12. Quality Assurance – Psycho-oncology
Regardless of the care setting, all areas of psycho-oncological services should be subject to a system of quality assurance which is subdivided into structural, process, and outcome quality and outlined below with regard to the specifics for the field of psycho-oncology work. For clinics, psycho-oncological services are to be integrated into the respective system of quality assurance based on legally regulated requirements for quality assurance. In other areas of care, the explanations provide guidance for the establishment of quality assurance for psycho-oncological services [1184], [1185].
12.1 Structural Quality
12.1.1 Personnel Qualification
All professional groups working in psycho-oncology should complete a curriculum-based psycho-oncological advanced training or continuing education with relevant content recognized by the German Cancer Society.
- Consensus
- Consent (91%)
Change note
All professionals working in psychooncology should complete curricular psychooncology training or continuing education with appropriate content.Currently, the designation „Psycho-oncology“ is not yet regulated by law. In accordance with the principle of interdisciplinarity, various professional groups can be active in psycho-oncology. First and foremost, these include psychologists, physicians, social workers/social pedagogues and other health and social science professions.
Depending on the field of activity within psycho-oncology, the service providers must be qualified to perform the required tasks with regard to psycho-oncological diagnosis, counseling, and treatment in a quality-assured manner in accordance with current scientific knowledge.
Those working in psycho-oncology should be able to recognize specific psychosocial and psychological burdens in patients and, if a comorbid mental illness is suspected, to initiate specific assessment and treatment in consultation with an appropriate medical specialist/psychotherapist.
The basic qualification required for specific psycho-oncological work should be a degree in medicine, psychology or other subjects such as social work or education. In addition to the basic qualification, there should be specific psycho-oncological advanced training and continuing education certified by the German Cancer Society.
The respective advanced training and continuing education requirements depend on the basic qualification and the type of psycho-oncological activities. For specific psycho-oncological activities such as the diagnosis and psychotherapeutic treatment of comorbid mental illnesses, a medical qualification (physician or psychology with psychotherapy) is required.
The advanced training and continuing education requirements for psychological/psycho-oncological activities in palliative care facilities are regulated in the S3 Guideline on Palliative Care (AWMF register number: 128-001OL) as well as in the "General Recommendations for the Establishment of Positions in Psychology in Hospice and Palliative Care“ from the DGP, Psychology Section.
Targeted training measures to promote communicative competence are a prerequisite for teaching basic communication skills to physicians and nurses working in oncology. These should be offered as part of the advanced training and continuing education. In addition, the competencies for conducting conversations with cancer patients and their relatives should be continuously improved and further developed [1186], [3].
For creative arts therapists working in psycho-oncology (music, dance, art therapists, etc.), a corresponding bachelor's or master's degree or in-service training that meets the quality standards of the respective trade and professional associations of the Bundesarbeitsgemeinschaft Künstlerischer Therapien (BAG-KT) is a prerequisite.
12.1.2 Personnel Requirements
In certified centers as well as in non-certified clinics, one full-time psycho-oncological staff member shall be provided for every 300 cases per year for all oncological diagnoses with the exception of prostate cancer or melanoma patients.
- Consensus
- Consent (79%)
- References
- [1187]
In certified centers as well as in non-certified clinics, one full-time psycho-oncological staff member should be provided for every 500 cases per year for prostate cancer as well as melanoma patients.
- Consensus
- Consent (79%)
In certified centers as well as in non-certified clinics, if the number of cases is less than that stated in Recommendations 12.2 and 12.3, the positions should be prorated.
- Consensus
- Consent (79%)
Depending on the care setting (hospital, rehabilitation clinic, outpatient facility), a sufficient number of psycho-oncology specialists based on cases must be provided to cover the psychosocial needs of the patients in the respective care facility [1187].
For palliative care facilities, there is no empirically based information on the required number of positions. Based on clinical experience, the General Recommendations of the Psychology Section of the German Society for Palliative Medicine recommend 0.05 psychology staff per bed for palliative stations and at least 0.5 psychology staff per bed for palliative medical services (inpatient or outpatient) [121]. In order to promote accessibility, cooperation, and therapeutic constancy, it is recommended that the corresponding staff members be integrated into a psycho-oncological team.
According to the S3 Guideline Palliative Medicine (AWMF Register Number: 128-001OL), depending on the respective hospital setting, it is possible to expand the palliative services by including creative arts therapists (e.g. art therapists, music therapists).
12.1.3 Spatial Requirements
Suitable accomodations shall be provided for psycho-oncological care services that enable undisturbed and confidential counseling and treatment, as well as fulfill general conditions that are appropriate in terms of the patient's privacy [1189]. Barrier-free access and good accessibility should be ensured [113], [1188]. For bedridden patients in multi-bed rooms, appropriate arrangements must be created so that the above-mentioned interventions can be carried out. Appropriate and well-equipped group rooms should be made available for group activities.
12.1.4 Treatment Concept
As a sign of quality standards, every facility must provide a detailed, written concept for the provision of psycho-oncological services. This should contain central statements about the contents, goals, and working practices of the psycho-oncological service providers. The concept should be based on the latest scientific findings in psycho-oncology and be updated on a regular basis. The integration of psycho-oncology into the mission statement of the respective institution is desirable.
12.1.5 Structural Characteristics of the Services
Specific requirements with regard to structural quality for quality-assured psycho-oncological care are:
- conceptual integration of psycho-oncology into the care concept of the respective institution and its mission statement
- in hospitals: organization of psycho-oncology specialists in their own specialized departments or consultant liaison services.
- specific qualification through curriculum-based psycho-oncological advanced training or continuing education
- adequate spatial arrangements
Recommendation and implementation of interventions according to the needs identified through screening and diagnostics.
- Consensus
- Consent (95%)
Change note
(12.4) Specific requirements with regard to structural quality for quality-assured psychooncological care are: - conceptual integration of psychooncology into the care concept of the respective facility and its mission statement - specific qualification through curricular psychooncological advanced training or continuing education - adequate spatial equipment - needs-based offerings.The psycho-oncological services in the respective facilities should be tailored to the specific distress situations and needs of the cancer patients and reflect the current state of scientific knowledge. The services must be clearly recognizable for patients with appropriate opening and consultation times (by telephone and in-person) as well as the named contact persons. For psychiatric emergencies, a corresponding emergency plan must be laid down in writing in all facilities. Information about the services offered should be provided through appropriate media such as flyers, websites, etc. In this context, care should be taken to ensure that the information is conveyed in a patient-friendly and easy-to-understand manner.
The processes of psycho-oncological diagnostics and interventions are documented in a quality manual in the quality management system of each facility.
12.2 Process Quality
To ensure the process quality of psycho-oncology practice, the following aspects should be implemented:
- Screening for psychosocial distress
- Establishing counseling or treatment goals together with the patients
- Inclusion of subjective needs
- Networking and cooperation
- Documentation of services on the basis of a suitable EDP-based system
- Patient-related reporting
- External supervision
- Consensus
- Strong consensus (100%)
Change note
To ensure the process quality of psycho-oncological activities, the following aspects should be implemented: - screening of psychosocial stress - definition of counseling or treatment goals - documentation of services based on a suitable system - patient-related reporting - external supervision - internal and external networking.12.2.1 Screening for Psychosocial Distress
The screening for psychosocial distress is carried out according to the procedures outlined in Chapter 7.2.
12.2.2 Establishment of Counseling or Treatment Goals
At the start of psycho-oncological counseling and/or treatment, the objectives should be discussed with the patient and the goals of the intervention should be defined together with the patient. In the course of psycho-oncological counseling and treatment, these goals should be constantly reviewed based on the progress of treatment and modified if necessary.
12.2.3 Networking and Cooperation
The networking of psycho-oncological tasks is to be defined not only with regard to facility-internal processes but also with regard to external networking and collaboration.
For the internal networking of psycho-oncological specialists, an interdisciplinary exchange takes place in the respective facilities (hospital, rehabilitation clinic, outpatient facilities) through regular organizational meetings, case discussions or ward conferences. In case or ward meetings, in addition to the medical, nursing and psycho-oncological specialists, all those involved in the treatment of the patients, such as physiotherapists, social counselors or chaplains, should be included as needed. The objective is the mutual exchange of information, coordination and planning of psycho-oncological diagnostics, counseling and treatment. If psycho-oncological services are provided by external specialists in inpatient facilities, appropriate forms of information exchange and cooperation in the above sense should be established. In the certified centers, psycho-oncological specialists should take part on the tumor boards on an as-needed basis.
The networking of inpatient and outpatient psycho-oncological services is an important task of psycho-oncological practice with regard to the provision of further psycho-oncological support and the continuity of care. Important cooperation and networking partners include the psycho-oncological services of the clinics, the outpatient psychosocial counseling centers, oncological specialized practices, established medical and psychological psychotherapists, and rehabilitation clinics. In addition, there should be close networking and cooperation with self-help organizations. All cooperation agreements should be documented in writing.
12.2.4 Documentation
Psycho-oncological services are to be recorded using documentation specific to the respective facility (hospital, rehabilitation clinic, outpatient facility). The documentation should contain a systematic baseline and progress documentation of the core features of the psycho-oncological interventions and should be maintained regularly. In this context, the data protection guidelines of the respective facilities must be observed with regard to the collection, storage and transmission of these data. The core features are:
- Indication for psycho-oncological care including psychosocial distress scores from screening
- Patient preference with regard to further offerings
- Type of diagnostics
- Type of intervention
- Duration and number of contacts
- Information on the outcome of counseling and treatment
- Type of end or further referral
A networking of the psychosocial data with the medical data must be ensured. It should be possible to provide statistical evaluations with corresponding key values on the psycho-oncological services at defined intervals (at least once a year).
12.2.5 Patient Reported Outcomes
The main contents and results of psycho-oncological counseling and/or treatment should be regularly reported in writing. Reporting follows the respective specifics of the facilities (acute care, rehabilitation, outpatient follow-up care).
12.2.6 Supervision
Regular external supervision of psycho-oncological practices is an essential component of quality assurance in all areas of psycho-oncological care and must be provided in all facilities. It serves to optimize treatment, relieve and support psycho-oncology professionals, and prevent burnout. The frequency of supervision depends on the needs of the specialist staff in the respective institutions.
External supervision shall be supplemented by intervision; this cannot, however, replace external supervision.
12.3 Outcome Quality
Characteristic of outcome quality is that one the one hand, reports on the success of psycho-oncological services should be documented in writing, and on the other hand, a systematic survey of patients should be conducted with regard to the achievement of goals and satisfaction. If systematic patient surveys are carried out as part of quality assurance, the subject of psycho-oncological services should be thematically included.
References
[1184] Schmitz, Torsten, Weis, Joachim, Herschbach, Peter, Qualitätssicherung in der Psychoonkologie, in Psychoonkologie: Diagnostik, Methoden, Therapieverfahren, Dorfmüller, Monika and Dietzfelbinger, Hermann, Editors. 2008, Urban & Fischer: Münschen. p. 165-168.
[1185] Weis, J., Giesler, J., Heckl, U., Völklin, V., Kuhnt, S., Eichhorn, S., Qualitätssicherung in der Psychoonkologie, in Handlungsfelder der Psychoonkologie, Weis, J. and Brähler, E., Editors. , Schattauer: Stuttgart.
[1186] Schumacher A., Stellenwert der Psychoonkologie im neuen deutschen Gesundheitssystem, Der Onkologe, 2004. 10(2): p. S98-S102., http://dx.doi.org/10.1007/s00761-004-0692-5
[3] Weis J, Schumacher A, Blettner G, Determann M, Reinert E, Rüffer JU, et.al. Psychoonkologie: Konzepte und Aufgaben einer jungen Fachdisziplin, Der Onkologe, 2007. 13(2): p. 185-194., https://journals.scholarsportal.info/details/09478965/v13i0002/185_p.xml
[1187] Mehnert-Theuerkauf, Anja, Faller, Hermann, Herschbach, Peter, Hönig, Klaus, Hornemann, Beate, Petermann-Meyer, Andrea, et.al. Psychoonkologischer Versorgungsbedarf in Krebszentren, Der Onkologe, 2020. 26(2): p. 178-184., https://doi.org/10.1007/s00761-019-00689-2
[121] Thyson, Tabea, Mai, Sandra, Gramm, Jan, Münch, Urs, Rahmenempfehlungen zur Einrichtung von Stellen der Psychologie in der Hospiz- und PalliativversorgungDeutsche Gesellschaft für Palliativmedizin e.V., 2020., https://www.dgpalliativmedizin.de/sektionen/sektion-psychologie.html
[113] Dilworth, Sophie, Higgins, Isabel, Parker, Vicki, Kelly, Brian, Turner, Jane, Patient and health professional's perceived barriers to the delivery of psychosocial care to adults with cancer: a systematic review, Psycho-Oncology, 2014. 23(6): p. 601-612., http://www.ncbi.nlm.nih.gov/pubmed/24519814
[1188] Neumann, Melanie, Galushko, Maren, Karbach, Ute, Goldblatt, Hadass, Visser, Adriaan, Wirtz, Markus, et.al. Barriers to using psycho-oncology services: a qualitative research into the perspectives of users, their relatives, non-users, physicians, and nurses, Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer, 2010. 18(9): p. 1147-1156., http://www.ncbi.nlm.nih.gov/pubmed/19727843
[1189] Schofield, Penelope, Carey, Mariko, Bonevski, Billie, Sanson-Fisher, Rob, Barriers to the provision of evidence-based psychosocial care in oncology, Psycho-Oncology, 2006. 15(10): p. 863-872., http://www.ncbi.nlm.nih.gov/pubmed/16381066